Create a Research Portal Account

Register to join our community of researchers and gain access to BetterLife US patient data and insights. All accounts are reviewed by our team before access is granted.

Affiliation

Please select the option that best describes your affiliation.

This helps us ensure appropriate access and support for different types of users.

Academic

I am a faculty, student, or staff at a university or academic institution.

Industry

I work at a biotech or pharmaceutical company or other commercial research organization.

Other Organization

I work at another type of organization not listed, such as a non-profit or healthcare organization.

Those living with X

I am an FSHD patient enrolled in BetterLife FSHD or a parent or delegate with a BetterLife account.

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Last Name^*

Email Address^*

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Cell Phone Number^*

Please provide a mobile phone number for 2-factor authentication

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State / Region^*

Affiliation^*

Two Factor Authentication^*

SMS

We will send a verification code via SMS to your cell phone number provided above

Voice

We will send a verification code via voice call to your cell phone number provided above

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I agree to the Terms of Service and Privacy Policy^*

Please read our Terms of Use and Privacy Policy before proceeding.